TODAY! 2015 Q3 P2 In the Know— The ABLE Act Part III P4 & 5 Where Hope Grows & Camp Ability P6 & 7 Pool Party & The Houston Buddy Walk P7&11 Circles Program & Community Groups Meet Sean, our July 2015 DSAH calendar model. He is in middle school and is a typical pre-teen boy! He participates in Karate in school, loves to ride his bike and is a great swimmer! He was also nominated at his school’s homecoming court this year! He also enjoys dancing, and watching movies and when he grows up he wants to be a teacher! Sean wishes all of you a Happy Independence Day!!!! Conoce a Sean, nuestro modelo de Julio del calendario de DSAH. El esta en la escuela media y es un típico adolecente! Practica el karate en la escuela, y le encanta montar bicicleta y es un excelente nadador! También fue nominado para la corte de homecoming este año en su escuela! El disfruta bailar y ver televisión y cuando crezca quiere ser un profesor! Sean les desea a todos un Feliz Dia de Independencia! The Mission of the Down Syndrome Association of Houston is to provide programs and support to individuals with Down syndrome, their families, and the professionals who serve them; and to create awareness in the community through advocacy, education and medical outreach. We envision a community in which all people with Down syndrome have the opportunity to enhance the quality of their lives, realize their life aspirations, and become accepted as part of our very diverse society. Change Service Requested HOUSTON, TX 77092 7115 W. Tidwell Rd. Bldg. K Suite 106 Down Syndrome Association of Houston PERMIT NO. 2639 HOUSTON, TX PAID NON-PROFIT ORG U.S. POSTAGE 2 Achieving a Better Life Experience (ABLE) Act ABLE Act Overview - continued from Q2 7. Can I have more than one ABLE account? No. The ABLE Act limits the opportunity to one ABLE account per eligible individual. 8. Will states offer options to invest the savings contributed to an ABLE account? Like state 529 college savings plans, states are likely to offer qualified individuals and families multiple options to establish ABLE accounts with varied investment strategies. Each individual and family will need to project possible future needs and costs over time, and to assess their risk tolerance for possible future investment strategies to grow their savings. Account contributors or designated beneficiaries are limited, by the ABLE Act, to change the way their money is invested in the account up to two times per year. 9. How many eligible individuals and families might benefit from establishing an ABLE account? There are 58 million individuals with disabilities in the United States. To meet the definition of significant disability required by the legislation to be eligible to establish an ABLE account, the conservative number would be approximately 10 percent of the larger group, or 5.8 million individuals and families. Further analysis is needed to understand more fully the size of this market and more about their needs for new savings and investment products. 10.How is an ABLE account different than a special needs or pooled trust? An ABLE Account will provide more choice and control for the beneficiary and family. Cost of establishing an account will be considerably less than either a Special Needs Trust (SNT) or Pooled Income Trust. With an ABLE account, account owners will have the ability to control their funds and, if circumstances change, still have other options available to them. Determining which option is the most appropriate will depend upon individual circumstances. For many families, the ABLE account will be a significant and viable option in addition to, rather than instead of, a Trust program. Article from NDSS. http://www.ndss.org/Advocacy/Legislative-Agenda/Creating-an-Economic-Future-for-Individuals-withDown-Syndrome/Achieving-a-Better-of-Life-Experience-ABLE-Act/ LOCAL TEXAS INFORMATION ABOUT THE ABLE ACT Achieving a Better Life Experience (ABLE) Act: SB 1664 has passed in Texas, both the Senate and House, and it is now signed by Governor Abbott on 6/19/2015. In the Know for Q4 of DSAH Today We will share more details about major legislation that passed during the 84th Legislature! HB 3374– Down Syndrome upon prenatal or postnatal diagnosis SB 507 - Cameras in self contained classrooms HB 1807 - Texas Higher Education Coordinating Board to maintain an inventory of postsecondary educational programs and services. 3 FALL 2015 Time: 7:00p – 8:30p Wednesdays, July 22, Aug. 12 & Sept. 23 One of the best gifts you can give your child is a great foundation for kindergarten. DSAH invites you to attend Smart Start – three sessions that will help you prepare for entering kindergarten. Smart Start is for you if you have asked yourself any of the following questions: Will my child be safe? Will my child succeed? The sessions will include: Student Readiness - high expectations, following rules and directions, handling schedule changes, insistence on compliance Parent/School Relations - communicating effectively, common mistakes, addressing concerns, what your teacher needs to know Will my child be included? Will my child have friends? Placements & IEP's - IQ testing, inclusion, Individual Education Plans and meetings, creating IEP goals Fostering Friendships -social skills for success, creating social opportunities, successful play dates, community activities, peer presentations Childcare and refreshments provided. Advance registration is required. You can sign up for our Smart Start session on-line at www.dsah.org or via E-mail to [email protected] ,or call 713-682-7237 x201. Registration for childcare must be made by July 8 for the summer session Parents who complete all sessions will receive a backpack and gift card for school supplies! Our summer sessions will have a pajama pizza party for the kids!!! Take this opportunity to ask questions, learn about local resources, and meet other parents whose children are also preparing to enter kindergarten. FREE TO UP TO DATE DSAH MEMBERS $40 to non-members All sessions will be held at the DS Resource Center, 7115 W. Tidwell Rd., Bldg. K, Suite 106, Houston, TX 77092 TODAY! Is going DIGITAL subscribe today at www.dsah.org DSAH Today will be an E-Newsletter for the months of August and September. Don’t miss a beat and sign up to receive your E-Newsletter today! www.DSAH.org DSAH HOUSTON @DSA_Houston @DSAHouston DSAH www.DSAH.org 4 WHERE HOPE GROWS Special Red Carpet Showing An unexpected journey, an unexpected friendship... DSAH and INTV Network joined forces to bring you an exclusive red carpet viewing of the movie “Where Hope Grows”. With a full theater, the movie was a huge success showing many parents how independent individuals with Down syndrome can be. Attendees had the opportunity to give us their opinions and thoughts about the movie while on the red carpet. Their thoughts can be seen in the red carpet movie by visiting DSAH’s Facebook page. THANKS TO ALL THAT ATTENDED!! DSAH e INTV Network se unieron para traerle a nuestros miembros una presentación en carpeta roja de la película, Where Hope Grows. Con una sala llena de espectadores, la película fue un gran éxito el cual le demostró a muchos padres de personas con síndrome de Down que pueden ser muy independientes. Los espectadores fueron entrevistados antes y después de la película y ellos compartieron sus ideas y pensamientos de la película en el video que puede ser visto en la pagina de Facebook de DSAH. GRACIAS A TODOS LOS QUE ASISTIERON! Come and join me @ Few Spots Still Available! Register TODAY @ dsah.org JULY 6 TO JULY 10 all age groups 5 Meet Coby !!! Our August 2015 DSAH Calendar Model!! He is a loving, energetic, and sometimes stubborn sweet little boy! He started walking at 2, uses lots of sign language to communicate, and is finally finding his voice with talking. He loves to play ball, swim in the pool, and play with his older siblings. He also loves to play with Mommy's hair! He is happy when he is eating because he loves food! Camp Ability is a summer day camp for children/teens with Down syndrome and their siblings ages 3-17 years at our Resource Center. We’ll have crafts, music, games, reading, writing, movement, a snack, and most of allfun! We will arrange to have siblings together if desired, even if they are in different age groups. Our theme is Dinosaurs! Conoce a Coby!!! El es nuestro modelo del calendario de DSAH de Agosto del 2015! El es un niño muy amoroso, energético y a veces terco! Empezó a caminar a los 2 años y usa mucho el lenguaje en señas para comunicarse. Últimamente ya esta usando su voz y eso nos alegra, A el le gusta jugar con la pelota, nadar y jugar con sus hermanos. También disfruta jugar con el cabello de su mama! El se siente muy feliz cuando esta comiendo por que le encanta la comida! COST: $60 for the entire week (all day) 9 AM-4 PM $30 for half day which is 3 hours either morning 9 AM-Noon or 1-4 PM. Gymboree dates: Saturday, July 18 , August 1 & 15 and September 19 Time: 11:00 a.m. to 12:00 p.m. DATES: July 6 to July 10, 2015 ALL AGES REGISTRATION: To register for the summer camp, visit www.DSAH.org or call us at 713.682.7237 X201 or x206. You can mail the payment (check or money order) to 7115 W. Tidwell Rd. Bldg. K #106 Houston, TX 77092 or you can pay the first day of camp. At DSAH 7115 W. Tidwell Bldg. K Suite 106 Houston, TX 77092 Then stay for social time from 12p to 1p. Everyone is welcome! Sábado, Julio 18 , Agosto 1 & 15 y Septiembre 19 de 11:00 a.m. a 12:00 p.m. (En Ingles) Luego quédese para una hora social de 12p a 1p. En el DSRC en el 7115 W. Tidwell, Edificio K oficina 106 Houston, TX 77092 Todos son bienvenidos! en Sábados, Agosto 1 de 1:00 p.m. a 2:00 p.m. Llegue a las 12 y comparta la hora social ! Las clases de Gymboree serán ofrecidas en Español para nuestras familias! Vengan a disfrutar de música y burbujas con los niños! www.DSAH.org Join us for a fun Sunday at DSAH’s Pool Party on Sunday July 19, 2015!!! This year we are going to Splashtown!!!! Tickets are only $10 per person for the first 200 before the deadline and they are good for the entire day! This price also includes lunch!! 6 DSAH will have it’s own pavilion from 1pm to 5pm where we will provide hamburgers, chips and drinks to our attendees starting at 1 pm. Purchase your tickets at www.DSAH.org Acompáñenos a divertirnos en el sol en la fiesta anual de piscina de DSAH el Domingo 19 de Julio en Splashtown! Los boletos son solo $10 por persona y son validos para todo el día incluyendo comida!! DSAH tendrá su propia área de 1pm a 5pm en donde proveeremos las hamburguesas, papitas y refrescos comenzando a la 1 pm. Compre su boleto hoy en www.DSAH.org Register at HOUSTONBUDDYWALK.org The DSAH Pantomime Troupe is available for performances! Book TODAY! [email protected] www.DSAH.org 7 Do you have questions on how to address the social and relationship boundaries issue with your loved one with Down syndrome? THEN... The Circles Introduction Workshop come and learn about The Facts of Life…and More! Join us for a morning introduction workshop of the CIRCLES® program for teachers, families and professionals about social and relationship boundaries. Recommended for parents of children ages 12+ Saturday, August 8, 2015 Time: 9:30 a.m. to 12:00 p.m. Location: The Down Syndrome Resource Center 7115 W. Tidwell Bldg. K 106 Houston, TX 77092 Registration fee: $15 Register @ DSAH.org or by calling 713.682.7237 by 8/5/15 About the Workshop: The first part of this workshop, will discuss the comparison of social and sexual development between typically developing children, teens and adults and those who have unique learning and behavioral needs and/ or developmental and intellectual disabilities. Light breakfast will be provided. Childcare not available. This workshop will be followed by a 6 week CIRCLES® Groups program that will teach individuals with developmental and intellectual disabilities about social relationships and boundaries. We recommend that if you would like to enroll your child in this program, you attend the initial workshop on Aug.8. GREAT WORKSHOP FOR PARENTS, TEACHERS, PROFESIONALS AND FAMILY MEMBERS. ALL ARE WELCOME TO ATTEND. Save the Date for the CIRCLES® Groups Program sessions Time: 10a-12p 8/15 8/22 Las sesiones del Grupo de CIRCLES® también serán ofrecidos en Español. Sin embargo la sesión de Ago. 8 solo será ofrecida en Ingles. 8/29 9/26 9/12 9/19 Followed by an introduction and overview of the CIRCLES® concept and curriculum with video clips. The emphasis will be on the way that families can support the learning and behaviors that is being taught in the CIRCLES® groups. This will also include information about using CIRCLES® as an abuse prevention tool with clips from both CIRCLES ® and CIRCLES ®: Stop Abuse. About our Presenter: Leslie Walker-Hirsch is an internationally recognized educational consultant who specializes in social and sexual development for individuals with intellectual disabilities. She is a dynamic and stimulating lecturer and is the cocreator of the widely used CIRCLES curriculum series, multi-media teaching materials for improving social competence and judgment, that is designed especially to address the learning styles of youth and adults with cognitive disabilities. She teaches in the Graduate School of Educational Specialties at The University of New Mexico. This educational workshop is sponsored by the United Way’s Community Building Grant www.DSAH.org 8 Club 21 will be at the Annual DSAH Pool Party @ Splashtown, tickets are ONLY $10 per person Sunday July 19th from 1pm—5pm Go to www.DSAH.org to purchase tickets today!! August 15, 2015 from 4pm to 6:30pm @ Track 21 Address: 4815 TX-6 Houston, TX Spaces is limited to the first 20 people with Down syndrome! All expenses will be paid for the first 20 people w/DS that RSVP!! For any ADDITIONAL Guest or Individuals with DS that RSVP after the deadline will have a $15.00 cost that will include: Mini Putt Putt golf for 2 hours Pizza & Drinks in our Club 21 Private Party Room DSAH will NOT be having transportation available. Parents are required to drop off & pick up their loved ones. September 19, 2015 from 2pm to 5pm @ AMF Windfern Lanes Address: 14441 Northwest Freeway Houston, TX 77040 Spaces is limited to the first 20 people with Down syndrome! All expenses will be paid for the first 20 people w/DS that RSVP!! For any ADDITIONAL Guest or Individuals with DS there will be charged of $20.00 that will include: Shoe Rental, 3 hours of unlimited Games of Bowling, Food, dessert and Drinks. DSAH will NOT be having transportation available. Parents are required to drop off & pick up their loved ones. RSVP No Later than August 11, 2015! (Or until all spots are filled) To RSVP Via Phone call 713-682-7237 or Email - [email protected] RSVP No Later than September 15, 2015! (Or until all spots are filled) To RSVP Via Phone call 713-682-7237 or Email - [email protected] In order to attend you must have an active Club 21 membership! Visit www.DSAH.org for more info In order to attend you must have an active Club 21 membership! Visit www.DSAH.org for more info www.DSAH.org 9 Leaders Annual Meetings Community Group Leaders, Co-leaders and all individuals interested in helping DSAH lead our Community Groups are invited to attend our Annual Community Group Leaders Meetings. DSAH’s Holiday Party!!! Sat. Dec. 12, 2015 @ H& H Ranch!!! Wednesday, September 9, 2015 Time: 7pm – 9p.m. Place: DSAH Resource Center 7115 W. Tidwell Bldg. K Suite 106 Houston, TX 77092 More details coming soon! Fiesta Navideña de DSAH! Sáb. Dic. 12, 2015 en el our H & H Ranch!! RSVP to [email protected] by 9.4 for the Sept. meeting Lideres, co-lideres y todos interesados en ayudar a DSAH con los Grupos Comunitarios están invitados a atender nuestra reunión Anual de Lideres Comunitarios Miercoles, Septiembre 9, 2015 Hora: 7 p.m. – 9 p.m. Lugar: DSAH Resource Center 7115 W. Tidwell Bldg. K Suite 106 Houston, TX 77092 Por favor confirmar su asistencia a [email protected] para el 9.4 para la de Septiembre. Meet Rachel, September 2015 DSAH Mas detalles pronto! calendar model. She enjoys participating in the Houston Ballet program and leads her family in prayer every meal. Loves Disney princesses costumes, movies, Barbies, the characters from Toy Story and her uncle’s dog named Trooper! When she grows up, she wants to be work at a restaurant! The Tomball mayor has also declared Nov. 8 as “Rachel Ann Can Day” in honor of her team in the Houston Buddy Walk. Conoce a Rachel Ann, nuestra modelo del mes de Septiembre del calendario de DSAH del 2015. Ella disfruta participar en el Houston Ballet y toma la iniciativa en bendecir las comidas con su familia. Le encantan los disfraces de las princesas de Disney, las Barbies, los personajes de la película Toy Story y el perro de su tío Tropper. Cuando crezca ella quiere trabajar en un restaurante y el alcalde de Tomball ha declarado el 8 de Nov. como el día de “Rachel Ann Can” en honor a su equipo en la Caminata de Amigos. Run for a Reason. Down Syndrome Interested in running the Chevron Houston Marathon? We have spots!!! Help us create awareness about Down syndrome while helping us reach our fundraising goal of $28,000 by becoming a HERO or a Fundraising for Registration (FFR) runner!!! Hero spots: $350 + reg. fee FFR spots: 1/2 marathon: $700 + $115 Reg. fee (due by Nov. 2, 2015) CORPORATE SPONSORSHIPS ALSO AVAILABLE! Contact Alejandra Lima for more details [email protected] www.DSAH.org 10 DSAH staff and Board of Directors thanks all who supported, sponsored and attended the Evening With The Stars! We are very proud of the Pantomime Troupe, models in the fashion show, and all individuals with Ds who participated in the evening. They truly are our stars! Our Sponsors 3rd Kind Customz Carrabas The Fontenot Family The Glass Family Toshiba The Lyle Foundation Mr. Insulation Thank YOU Knights of Columbus Council 8096, Fabian and Thomas for bartending! HUGE thanks to Marlen Montero from Azteca TV and Mega 101 for MCing the night as well to our Pantomime Troupe Artistic Director Julithe Garrett. With gratitude to the Rose Garden Boutique for dressing our fashion show models! Very special thanks to Arlene & Thank you to everyone involved in making the night perfect! Including our E4L families, friends, sponsors, volunteers, supporters, and staff! An Evening with the Stars was a great access and every person there made a huge impact! We came together for the amazing Education for Life STARS and its moments like those that make my job so much more enjoyable! I appreciate and congratulate all of the fashion show models, Pantomime performers, and STARS! You all are spectacular! Visit DSAH’s Facebook page for more event pictures Monserrat Pardo - Education for Life Coordinator 11 at the DSAH Fort Bend Community Group DSAH’s Woodlands Community Group at Bouncing Bears Dates: Tuesday July 21, Aug. 18 and sept. 15, 2015 Time: 6:00-8:00 pm. Location: 6526 FM 2920 Spring, TX 77379 Date: Tuesday July 14, Aug. 11 and September 8, 2015 Time: 6:00-6:45 pm. Location: 5201 Texas 6 #300 Missouri City, TX 77459 Recommended for children with Ds and siblings under 10 years old. For more information [email protected] or 713.682.7237 x201 Bouncing Bears will be closed to the general public. Recommended for children with Ds and siblings under 10 years old. For more information [email protected] or 713.682.7237 x201 Fort Bend Community Group is looking for Group Leaders! Do you have a few hours a month you can dedicate to planning small socials for the community? Then we need YOU! Contact us at [email protected] Fecha: Martes Julio 14, Ago. 11 y Sept. 8 del 2015 Hora: 6:00-6:45 pm. Lugar: 5201 Texas 6 #300 Missouri City, TX 77459 Fecha: Martes Julio 21, Ago. 18 y Sept. 15 del 2015 Hora: 6:00-8:00 pm. Lugar: 6526 FM 2920 Spring, TX 77379 Recomendado para niños con sD y hermanitos (as) menores de 10 años Recomendado para niños con sD y hermanitos (as) menores de 10 años. Para mas información [email protected] o 713.682.7237 x201 El Grupo de Fort Bend esta en búsqueda de Lideres para este grupo! Si usted tiene unas cuantas horas al mes que pueda dedicar a planear eventos sociales para la comunidad, entonces este es el momento para ayudarnos! comuníquese a [email protected] Para mas información [email protected] 713.682.7237 x201 Bouncing Bears esta cerrado al publico en general. DSAH’s Pasadena Community Group FUN AT CHUCK E. CHEESE’S Dates: Saturday, Aug. 22, 2015 Time: 11:00 am - 2:00 pm. Location: 5075 Fairmont Pkwy Pasadena, Texas 77505 Come join us for fun with the mouse! DSAH will provide pizza, drinks and tokens for children. Please RSVP by 8/8/20156. For more information [email protected] or 713.682.7237 x201 DIA DE DIVERSION EN CHUCK E. CHEESE’S Fecha: Sábado, Ago. 22, 2015 Hora: 11:00 am - 2:00 pm. Lugar: 5075 Fairmont Pkwy Pasadena, Texas 77505 PASADENA PICNIC WITH FRIENDS Dates: Saturday, Sept. 26, 2015 Time: 11:00 am - 1:00 pm. Location: Verne Cox Multipurpose Recreation Center 5200 Bruke Rd, Pasadena, Texas 77504 Pack a lunch and join us for fun at the park. Bring a new family or school friend and let's show support to those who support us with a fun time at the park!! Dsah will provide snacks and drinks you are welcome to bring a lunch. For more information [email protected] or 713.682.7237 x201 Acompáñanos a divertirnos con el ratón! DSAH proveerá pizza, refrescos y monedas para jugar a los niños. Reserve antes del /8/20156. Para mas información [email protected] o 713.682.7237 x201 DSAH’s Katy Community Group @ Dates: Every Monday in July, August and September 2015 Time: 6:30 pm. Location: 550 S Katy Fort Bend Rd, Ste 500, Katy, TX 77494 Recommended for children with Ds and siblings under 10 years old. For more information [email protected] or 713.682.7237 x201 Fecha: Todos los lunes en Julio, Agosto y Sept. en el 2015 Hora: 6:30 pm. Lugar: 550 S Katy Fort Bend Rd, Ste 500, Katy, TX 77494 Recomendado para niños con sD y hermanitos (as) menores de 10 años. Para mas información [email protected] o 713.682.7237 x201 DIA DE PICNIC CON AMIGOS EN PASADENA Fecha: Sábado, Sept. 26, 2015 Hora: 11:00 am - 1:00 pm. Lugar: Verne Cox Multipurpose Recreation Center 5200 Bruke Rd, Pasadena, Texas 77504 DSAH’s Spring Community Group July 19 - Join us the DSAH Pool party!!!!! Aug. 14 - Peanut Butter Cannery from 10am to 12 pm Sep. 26 - Conference @ St. Ignatius of Loyola Friend the DSAH Spring Community Group on Facebook for more event details!! Jul. 19 - Acompáñenos en la fiesta de piscina de DSAH!!!!! Ago. 14 - Peanut Butter Cannery de 10 am to 12 pm Sep. 26 - Conferencia en St. Ignacio de Loyola Hágase amigo del grupo de Spring en Facebook para mas detalles! www.DSAH.org Looking for some great reads this summer? Try one of these... Early Communication Skills for Children with Down Syndrome An expert shows parents and professionals how to support and encourage speech & language development in children with Down syndrome from birth to age 6. Covers problem areas & treatments, dual diagnosis, technology & AAC, and includes CDROM of forms. 12 Down Syndrome Parenting 101 Going Solo While Raising Children with Disabilities 2012 About.com Readers' Choice Awards Winner Uplifting & realistic advice from veteran parent and educator on what's important when raising a child with Down syndrome: appreciation for personality, literacy, education, discipline & more. A psychologist shares her expertise about raising a child with disabilities on your own or "solo". Whether a solo parent by choice or circumstance, readers will find a wealth of practical ideas for living well. Mental Wellness in Adults with Down Syndrome Married with Special-Needs Children 2006 ForeWord's Book of the Year Award Finalist Experts in adolescent and adult Down syndrome issues advise how to promote mental wellness and troubleshoot when problems arise. 2007 iParenting Media, Excellent Products Award Offers marital advice for parents juggling the demands of a child with special needs. These books and many more can be found at www.woodbinehouse.com See what’s happening in our Fasten Your Seatbelt An engaging question and answer format addresses the issues and concerns of teens who have a brother or sister with Down syndrome. You can also purchase this book from DSAH for $10 + Shipping. Call 713.682.7237. Limited quantity avail. Adaptive Basketball Ages 5-19 Adaptive basketball is modified to accommodate youth with special needs. Each participant is placed with a volunteer buddy to assist with each lesson. Parent Resource Network 2015 Super Summer Webinar Series 7/7/2015 10am 7/14/2015 10am with Disabilities 7/21/2015 10am 7/28/2015 10am Creative Parenting Siblings of Children Self-Care for the caregiver Stress management and Resiliency Visit partnerstx.webex.com for more information. www.DSAH.org REGISTRATION: ends 6.30.15 SESSION DATES: 7/6 - 8/10 TIME: Monday’s 6 pm FEE: $25 Location: Langham Creek YMCA To register, visit www.ymcahouston.org or call Sarah at 281.859.6143
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