S TAY I N G C O N N E C T E D A F T E R PA R A L Y S I S Barbara Appel Steven Augustine Paul Averill Phil Beder Walter Benvin Simcha Berman David Bianchi Angelo Bianco Karen Biscotti Ted Bodenheimer Rosemary Boyle Michael Bravo Jeff Brosi Alan T. Brown James Brown Kurt Brown, Sr. Karl W. Bruning Marc Buoniconti Angela Bushey Stephen J. Butler Victor Calise Terry Canty Steven J. Caputo Bridget Carvajal David Carmel Bill Cawley James Cesario Jamie Clare Francesco Clark Kevin Conlon Jaime Contreras Brendan Costello Michele Daly Barbara Deinhardt Massimo Desiderrio Bill Duff Timothy Dunn Chris Durfee Alisa Feldman Larry Feltzin Tony Fitzgerald Beth Flannery Eric Friedland Judith Goodman Jeff Gorman Erik Grafe Chris Grant Jimmy Greene Patti Gregory Daryl Gwynn Henry Handel Ken Harrington-Howes Henry Hasson Tom Heimer Justin Helstein Louis Hernandez Danny Heumann Erik Hjeltnes Keiko Honda Danny Hong Jack Jablonski Deodat Jhoda Joshua Klein Elisha Kobre Ross Kreines Geoff Krill Deborah Krotenberg Corinne Lantz Dennis Larkin Herman Liere Christine Mace Tom Mastin Steven McDonald Mark Meissner Debra Mellen Mirthe Merville Donna Messinger Michael Monaco Jim Monahan Michael Montalto Peter Morton Eric Muhlrad Kareem Nelson Chris Noel Tony Nogueira Ken Opalsky Jessica Orol Mark Pinney Jason Pinskey Ilya Poluektov Andrew Price Taylor Price Keith Prunty Gary Qualles Darren Quinn Ziggy Repetto Neal Richards Brian Rocco Nick Roiter Ethan Ruby Ed Russo Bill Ryan, Jr. Mike Ryan Walter Rynasko Ted Saland Edin Sarkinovic Daniel Schleifman Saira Sher Wilfredo Soto Henry Stifel III Daryl Stingley Carlana Stone Miguel Such Daniel Tratt Marion Tuchman Jose Uribe Mike Utley Lauren Verlizzo Laura Wagner Sterlie Wilson Alexander Wood Jeff Worthington And we remember: Shlomo Feder Ed Gallagher Michael Kranis Bill Lavner Jillian Orrick Christopher Reeve Doron Troper John Watkins Read & Learn About Our Program Services and New Outreach Initiatives Your Support Improves the Lives of People Living With Paralysis ATBF’s New Mission Statement The Alan T Brown Foundation (ATBF) is dedicated to improving the quality of life for people living with paralysis. Through personal contact we provide information, resource referrals and peer support to the paralyzed individual and their family. We strive to assist individuals in achieving the highest personal level of independence, sustaining a healthy lifestyle, managing daily and chronic health issues, and adjusting to their new life after paralysis. Outreach & Peer Mentoring Program Spinal cord injury (SCI) turns a life upside down. Although paralysis can occur from any number of reasons — an accident, virus, surgery, stroke — the end result is the same: altered lives filled with overwhelming challenges, changes and adjustment. The ATBF Outreach Program offers meaningful assistance and hope in several ways. ATBF functions with compassion and understanding as a resource and support system for the newly injured and their families. Telephone counseling is an ongoing and essential component of the Foundation’s outreach mechanism. These calls and meetings can be about coping emotionally, physically and/or psychologically. ATBF disseminates information regarding recommended doctors, hospitals, rehabilitation centers, therapists, travel, fertility options, playing sports, going back to school — and so much more. The list is endless. THE A L A N T In coping with uncertainty and trauma, it can be reassuring to know that people care. ATBF takes great pride in the role it has played, and continues to fulfill, in making a difference in so many lives. The ATBF Peer Mentoring Program is under the umbrella of the Outreach Program. Through the Peer Mentoring Program, lifelines are forged to offer support and assistance in moving forward. The Foundation facilitates relationships by connecting the newly injured with those who have “been there.” ATBF links individuals based on their level of injury, age, common interests, etc. It also helps bring together spouses, siblings and friends of those who have become paralyzed. B R O WN F O U N D A T I O N 1 Health & Fitness Program at Mount Sinai Medical Center Department of Rehabilitation We are proud to continue to support the Health & Fitness Series at Mount Sinai Medical Center Department of Rehabilitation. This program runs on Tuesday and Thursday evenings from 5-7pm and consists of a variety of physical exercises dedicated to improving the physical and mental health and fitness of in-patient and out-patient individuals with spinal cord injuries. ATBF funds are used for supervision by a physician and a recreational therapist and for the upkeep of exercise equipment including a vitaglide, universal weight machine, stationary hand cycle, upper-toner, speed-bag, free weights, rickshaw and more. This outreach initiative provides paralyzed people with a forum for physical activities and emotional support at a location many are already connected with if they have been previous in-patients! *Shawn has an incomplete injury and has made great strides in his rehabilitation efforts. “During my session of weight training, I managed to work out muscles I had not worked out in a long time. This gave me the opportunity to work with amazing instructors who gave me the drive and motivation to achieve my weight level goal.”- Sabrina Bennett Below are a few words from the program participants: SAVE THE DATE: “I am grateful for the out-patient Weight Lifting Program. It gave me a twice weekly outside activity that has assisted immeasurably in the progress I have made towards walking again. While the concentration was on my upper body - my biceps, triceps, shoulders, forearms, and chest, it has been my sense of self-acceptance where I’ve made the most gains. It was participation in this program which has bolstered my motivation and desire to walk again; something a year ago I did not believe possible. The program has contributed towards a measurable and significant improvement in my overall well being.”- Shawn Young 2 THE A L A N T Sunday, February 1st, 2015 11th Annual Family Fun Day Monday, August 3rd, 2015 27th Annual Golf & Tennis Tournament Committees Forming Now! Email [email protected] B R O WN F O U N D A T I O N The AXIS Project The Alan T Brown Foundation was invited to the launch of The Axis Project in late August by our friends at Wheeling Forward and Wheels of Progress. The Axis Project is a new and innovative social daycare center designed for people with disabilities. The program is located in a 7,500 square foot multidisciplinary center in Harlem that offers programs and activities designed to empower and motivate people with physical disabilities to pursue a healthy, active life style. The center is wheelchair accessible and features all accessible equipment. Adults 18 or older who need help with activities of daily living and are Medicaid-eligible may participate. The program is located at 1325 Fifth Avenue on the Ground Floor in NYC. The entrance is on East 112th Street. Key leaders of the program include Fitness Director, Lawrence Harding; Program Co-Director Alex Elegudin, Co-Founder of the non-profit Wheeling Forward; Program Co-Director George Gallego, Founder of the non-profit Wheeling Forward; Kiki Flynn, Renowned Yoga Director; and Movement Instructor, Zazel Chavah O’Garra. ATBF is proud to support this program in 2015. THE AL A N T B R O WN F O U N D A T I O N 3 North Shore-LIJ Sports Therapy and Rehabilitation Services (STARS) Program Sports Therapy and Rehabilitation Services (STARS), part of the North Shore-LIJ Rehabilitation Network, helps you and your loved ones find relief from pain and get moving again after an accident, injury, illness or surgery. The experienced and knowledgeable staff of physical therapists, occupational therapists and other health professionals truly understands the meaning of quality care and are chosen as much for their compassion and caring as for their skill and experience. They will provide you with the education, support and motivation you need to get back to your individual level of independence. ATBF is proud to support this program. “After the accident, the only body parts I could use were my shoulders, arms, hands and upper chest. If it were not for my doctor and therapists at STARS, I am not sure I would have been able to remain independent.” “The services are remarkable and the staff is very professional! The STARS is located at six easy to access locations throughout Long Island and Queens. STARS East Meadow is located at 801 Merrick Avenue in East Meadow, NY 11554. They offer rehabilitation services for persons living with spinal cord injury as well as an array of other services such as: orthopaedic and joint replacement rehabilitation, neurological rehabilitation, wheelchair evaluations, balance and vestibular rehabilitation, hand therapy, aquatic therapy, spine care, and fracture and trauma care. STARS offers weekly classes such as Multiple Sclerosis classes, arthritis aquatic classes and cancer exercise classes. For more information or to learn more about the STARS Program call: (516) 393-8900 or visit www.northshorelij.com/STARS 4 THE A L A N T B R O WN F O U N D A T I O N therapists treat you with love, respect and care for you. They make you feel like family.” Transition Care Program The Alan T Brown Foundation Transition Care Program provides important home care services to uninsured paralyzed patients through the Visiting Nurse Service of New York (VNSNY), reflecting the Foundation’s decision to focus on quality of life issues. The transition from hospital to home is most often a traumatic and chaotic time for a newly-injured person. Program participants and their families receive visits from a wide range of health care providers who will help them manage their new physical limitations and daily routines by demonstrating: how to transfer from a wheelchair to a bed, how to take a shower, how to prevent pressure sores, and so much more. a spinal cord injury leaving him paralyzed from the chest down. He was referred to VNSNY after being turned down by a rehab center as he did not have any insurance coverage. We admitted him after he was discharged from the hospital as free care. The VNSNY team (nurse, therapist and social worker) in conjunction with the patient and his wife developed a plan to help return to maximum level of function, control his pain and to obtain financial assistance for medical care. When he was discharged he was able to bathe, dress himself, transfer and to walk with the aid of an assistive device. Patient 2 is a 33 year old male who was recovering in a hospital in Haiti from a gunshot wound which left him paralyzed from the waist down. He was evacuated from Haiti following the earthquake and was admitted to a hospital in NYC. VNSNY admitted him with free care to assist in stabilizing complications from his injury. He had an open wound on his left hip and had also developed a blood clot in his lower left leg. Once stabilized, he returned to his family. The ATBF Transition Care Program will be there for those during that crucial time when they are adapting to their new environment as a paralyzed person, and help set the groundwork for their future care. Patient 1 is a 24 year old male who lives in Manhattan. He fell off the roof of a three-story building resulting in 16th Annual Mount Sinai Rehab Fair ATBF participated in the 16th Annual Mount Sinai Rehab Fair on Wednesday, October 1st, 2014. The fair was held at the Guggenheim Atrium at the Mount Sinai Health System located at 1468 Madison Avenue, in New York City. Highlights of the day included demonstrations of the latest rehabilitation equipment; glucose and blood pressure screenings; safety and injury prevention; sports and recreation activities; community agencies; information, education and advocacy; and entertainment with giveaways and food. ATBF Staff Members Fran Brown and Chrissy Oliva met with in-patients and out-patients and networked with advocates as well as the agencies present. This annual event provides ATBF with the ability to continue assisting people with new spinal cord injuries, reacquaint ourselves with familiar faces and allows us to network for potential collaborative programs and events. THE AL A N T B R O WN F O U N D A T I O N 5 The Inaugural Spinal Cord Injury The Alan T Brown Foundation was proud to co-organize the first Inaugural Spinal Cord Injury Awareness 5K Run, Walk & Roll on Saturday, October 11th, 2014 at Flushing Meadows-Corona Park in Queens, NY. We had 188 participants sign-up for the event with over 40 dedicated volunteers, and despite the wind and rain, 109 amazing people crossed the finish line. The event raised over $18,000 which will go directly toward the five collaborating organizations; the Alan T Brown Foundation, the Greater New York Chapter of the National Spinal Cord Injury Association, Wheeling Forward, Wheels of Progress and the Wheelchair Sports Federation. We extend a special thank you to our Gold Event Sponsor, United Spinal, and Bronze Event Sponsor, Hollister. The event collaborators were also thankful to receive in-kind donations of water and sport drinks courtesy of ShopRite of Oakland, transportation donated by Bussani Mobility and all signs and banners donated by Impact Displays Group. The purpose of this event was to help bring awareness to spinal cord injury (SCI) and paralysis. In promotion of the event, we educated our community on spinal cord injury during September’s nationally recognized Spinal Cord Injury Awareness Month with daily social media posts and weekly email messages. Traumatic spinal cord injuries (SCI) occur approximately 30 times a day across the United States. 80% of those injuries effect young men, ages 16 to 30 years of age; presenting tremendous physical, emotional and financial challenges as they face living with paralysis. This important fact and others were shared within our community and by our collaborating organizations leading up to the event. We hope to continue educating the public throughout the year and building this event to attract more and more support and awareness for our most worthy cause. 6 THE A L A N T B R O WN F O U N D A T I O N Awareness 5K Run, Walk & Roll THE AL A N T B R O WN F O U N D A T I O N 7 26th Annual ProAm Golf The 26th Annual ProAm Golf & Tennis Tournament was held at two new course locations, Tamarack Country Club and Fairview Country Club in Greenwich, CT and featured a new ProAm format. This year’s event honored John Rosasco, Senior Vice President, Public Relations and Player Recruitment at the Madison Square Garden Company, as our Guest of Honor and James J. Cesario, M.A., CTRS as our Standing Tall Award Recipient. Jim is the Spinal Cord Injury Outreach Coordinator of the Department of Physical Medicine and Rehabilitation at Mount Sinai Hospital and Founding President of the Greater New York Chapter of the National Spinal Cord Injury Association. A big thank you to our Golf Co-Chairs, James Carnavalla and Damien McClave and our Tennis Co-Chairs, Joseph Sokol, Alexandra Ziarko and Grace Ziarko. The event was a huge success because of our entire Tournament Committee and our extraordinary volunteers. With the luck of great weather, we had over one hundred and seventy golfers and golf professionals who participated in the golf portion of the Tournament and a superb turnout for our Cocktail Reception and Dinner, as well as our Tennis Tournament. Bruce Beck and Sam Rosen served as our Dinner Hosts and kept the night alive with their witty banter. We are grateful for their presence and dedication. The event would not be made possible without the generous support of our sponsors: Ingeborg and Ira Rennert, ShopRite of Oakland, DocPlace, Central Business Solutions, Inserra Shop-Rite Supermarkets, Affiliated Adjustment Group, Constellation Wealth Advisors, Castle Bar & Grill, and Port Logistics Group. 8 THE A L A N T B R O WN F O U N D A T I O N & Tennis Tournament THE AL A N T B R O WN F O U N D A T I O N 9 10th Annual Family Fun Day On Sunday, February 23rd, 2014 the Alan T Brown Foundation hosted its 10th Annual Family Fun Day at the 69th Regiment Armory in NYC. Adults and children of all ages made their way to the Armory on Lexington Avenue to celebrate a day focused on fun, as well as generations giving back. With a circus, giant inflatables, a DJ, carnival booths, art by MARCO, tie dye t-shirt making, face painting, music by Peter Davis, relays by Coach Chris, video games, jewelry making, appleseeds’ various build it! break it! fix it! activities, lip gloss making and a race car course-over 500 people proved this event a huge success! Thank you to our loyal sponsors and to our dedicated Chairs- Linda & Jeffrey Esses, Dara & Adam Freed and Jenn Muhlrad ---for helping make this Family Fun Day the best yet! 10 THE A L A N T B R O WN Sign-up for this year’s Family Fun Day Committee, which will be held on February 1st, 2015. You can let us know by contacting Fran Brown or Chrissy Oliva at the Foundation via email at [email protected] or phone, 212-944-8727. F O U N D A T I O N Hockey For A Cause On the evening of Saturday, January 18th, 2014, the Annual SAR vs. Ramaz Hockey Tournament to benefit the Alan T Brown Foundation (ATBF) was held at the Ramaz School in NYC. This year over $9,000 was raised through the combined sale of raffle tickets and sponsorships. We were very grateful and fortunate to have had the support of so many families. This year’s game featured Motivational Speaker George Gallego, the Founder of Wheels of Progress. George is a paraplegic and world class athlete who for the past four years has competed in triathlons around the world. He spoke to the children and parents between games about the many triathlon competitions that he has participated in as a para-athlete. He also told the children about the importance of doing good deeds, being kind THE AL A N T B R O WN and helping others recounting a story of a homeless man he used to help. This, he emphasized, is primary in his life--- as well as the benefit of people caring about others that are in need on many levels. George then asked a student to come over and reach into the backpack on the back of his wheelchair. The student pulled out over 20 race medals hanging on different color ribbons. These were the trophies that George had won in many of his competitions. George asked everyone to focus on the medals and then delivered his very clear and strong message - in life accolades and awards can never compare to the value of helping another human being. F O U N D A T I O N 11 Junior Board Networking Event ATBF LEADERSHIP Fran Brown Co-Founder / President Chrissy Oliva Director of Development BOARD OF DIRECTORS Robert C. Clare Chairman of the Board Peter Rosenberger Vice–Chairman Eric Muhlrad Secretary Daniel J. Ordan Treasurer Jack Conlon President Emeritus Alan T. Brown Co-Founder Benjamin Brown Paul D’Antonio Jimmy Haber Tamie Kranis Sara Lavner Daniel Uribe Sandy Ward On February 26th, 2014 ATBF’s Junior Board hosted their first networking event, inviting new friends and faces to learn about the Foundation. A special thanks to Alissa and Howie Shams for sharing their home with us. We are so excited to have a growing interest in the Junior Board! MEDICAL ADVISORY BOARD *Photo From left to right: Rachele Rosen, Shelby Greenbaum, Fran Brown, Gabriel Schwartz, Nathan Shams, Chrissy Oliva, Chad Stogel, John Trentacoste SAVE THE DATE: Sunday, February 1st, 2015 11th Annual Family Fun Day Monday, August 3rd, 2015 27th Annual Golf & Tennis Tournament Committees Forming Now! Email [email protected] 12 THE A L A N T B R O WN Adam Bender, M.D. Martin B. Camins, M.D., F.A.C.S. Frank Cammisa, M.D. Andrew Casden, M.D. Frank J. Eismont, M.D. Barth A. Green, M.D. Arthur Jenkins, M.D. Michael Kaiser, M.D. Steven Kirshblum, M.D. Mark S. Nash, Ph.D. Michael Neuwirth, M.D. Patrick F. O’Leary, M.D. Sheldon Pike, M.D. Kenneth Prager, M.D. Kristjan Ragnarsson, M.D. Adam B. Stein, M.D. Wise Young, M.D., Ph.D. JUNIOR BOARD OF DIRECTORS Cinthya Alvarez Paul Averill Christian Coates Ben Crovella Alyssa D’Antonio Clint Dewey Max Dorne Evan Dremluk Michael Dremluk Matt Dubbioso Samuel Goldberg Shelby Greenbaum Sophie Kahn Alexandra Kern Vanessa Kern Ethan Kobre Kaitlin Krieger Christina Mallon F O U N D A T I O N Zach Masters Kyle McClave John McFadyen James Michalove Matt Popper Sarah Pous Maxi Prinsen Will Quartner Brittany Quigg Gabriel Schwartz Nathan Shams Chad Stogel Bobby Swift Mickey Swift John Trentacoste Daniel Uribe Tom Vitti Adam Walder
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