Māori Health Research Symposium 10 March 2015 Introduction: The Health and Disability Ethics Committees, in conjunction with the Capital & Coast District Health Board, would like to invite you to a free day of Maori health research ethics on 10 March 2015. A range of knowledgeable speakers will be there to present and discuss contemporary issues, offering advice and support for researchers, ethics committee members and those interested in health research. Location: Horne Lecture Theatres - Wellington Regional Hospital There is ample car parking onsite, managed by Wilson Parking. Entry and exit to the underground car park is via the Riddiford Street entrance to the Wellington Regional Hospital. Schedule: Time Event 10.30 – 11am Karakia / Welcome 11:00 – 12:00pm Dr Barry Smith - Māori Research Ethics: An Introduction 12:00 – 1.00pm Maui Hudson – Bio banking He Tangata Kei Tua 1.00 –1:45pm Lunch Dr Helen Wihongi and Mr Kerry Hinii - Tensions between Māori and 1:45 – 3:00pm Western Tikanga / Ethics in Clinical Research Practice and How These Are Being Resolved 3:00 – 3.15pm Break Dr Maureen Holdaway – Cross-sectoral ethics arrangements for 3.15 – 4.00pm health and disability research - response to NEAC's discussion document' 4.00pm Poroporoaki / Farewell Speaker Bios: Barry Smith From Te Rarawa and Ngati Kahu, Barry is a population health analyst with the Lakes District Health Board and a contract analyst to the Ministry of Health. His academic background in sociology, statistics and music supports a work history in tertiary education and social and health research. He contributes to ethics courses run by the University of Otago Bioethics Centre and teaches on Victoria University’s Postgraduate Diploma of Clinical Research. His research interests are in health disparities, Māori ethical frameworks and ethics review processes. He is a co-author of Te Ara Tika, a grant reviewer for the Health Research Council and a chair and member of a number of its Science Assessing Committees. He currently leads the Lakes DHB Research and Ethics Committee and was a chair of the Bay of Plenty Regional Ethics Committee and the Multi-region Ethics Committee. He chairs the Health Research Council Ethics Committee and is a member of the Advisory Committee on Assisted Reproductive Technology (ACART) and the Middlemore Biobank Governance Committee. He is a Marsden Fund recipient with Martin Tolich from Otago University where their book on the New Zealand ethics review system entitled The Politicisation of Ethics Review in New Zealand will be published by Dunmore Publishing and released in May 2015. He is also a team member of a 3 year $1.1 million HRC grant "Building bridges for culturally ethical bio-banking and genomic research" run out of the University of Waikato. Outside of health and ethics, Barry is a gigging guitarist with wide performing experience. He has taught in the Department of Music at Waikato University and at Te Wananga o Aotearoa’s School of Performing Arts. He received the QSM in 2008 for his contribution to the performing arts and ethics. Maui Hudson Whakatohea, Nga Ruahine, Te Mahurehure Maui Hudson is a researcher at the University of Waikato and currently holds Senior Research Fellow positions in the Māori and Indigenous Governance Centre in the Faculty of Law, and the Environmental Research Institute in the Faculty of Science. He also has a Research Developer position working with iwi to develop research proposals and provides cultural and ethical advice to researchers. Maui has been a member of a number of national and institutional ethics committees and was part of the team that developed Te Ara Tika: Guidelines on Māori Research Ethics – A framework for researchers and ethics committee members. He is currently leading an HRC funded project Te Mata Ira which is exploring Māori views on biobanking and genomic research with a view to developing culturally informed guidelines for research. Mr Kerry Hiini Mr Kerry Hiini (Ngati Hine; Tapuika) is currently a Portfolio Manager for Waitemata and Auckland District Health Board. Prior to this he was a Planning and Funding Manager for Auckland District Health Board (2007-2013). Mr Hiini has completed a Postgraduate Diploma in Public Health at Massey University and completed a Diploma of Health Management at the University of Auckland (1996). He is a current member of the Kowhai Intermediate Board of Trustees (2007-present) and a previous member of the Te Whao Urutaki Board of Trustees (2005-2006), the Newton Central Primary School Board of Trustees (2005-2006) and the Counties Manukau District Health Board Ethical Issues Review Committee (2006) to name a few such positions. Mr Hiini sits on the Nothern A Health and Disability Ethics Committee as a lay member Dr Helen Wihongi Dr Helen Wihongi is a Research Advisor – Māori at Waitemata and Auckland DHBs. Dr Wihongi is involved in reviewing research applications across the Auckland and Waitemata DHB, and works to support researchers to address inequalities within clinical and community settings. Dr Wihongi works to develop the capabilities of Maori researchers within the clinical setting. Dr Wihongi gained her PhD at the University of Waikato, in Community Psychology. Maureen Holdaway Te Aithaunui-a-Paparangi, Ngati Hauiti Maureen is the deputy director for the Research Centre for Mâori Health and Development, Massey University, and a registered nurse with extensive experience in primary health care. Maureen has worked in the health and education sectors for many years. Her key areas of research expertise are in Mâori and indigenous health development, primary health care and health workforce development. Maureen has collaborated on national and international studies focusing on indigenous health and development. She is a named investigator on two core programme grants for the centre, a number of individual Health Research Council of New Zealand grants and other research involving significant collaborations within Massey University and with other universities and health service providers, both nationally and internationally. Bookings: Please contact Kelly Bargh at [email protected] to reserve a place For other questions feel free to contact Nic Aagaard at [email protected]
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