1. No category

ORGANIZING AND SCIENTIFIC COMMITTEES
Congress Director:
Scientific Committee:
Dr. Francisco Dasí
Dr. Salvador Aliño
Organizing Committee:
Dr. Antonio Alberola
Dr. Amparo Escribano
Dr. Ignacio Blanco
Dr. Estrella Fernández-Fabrellas
Dr. Carmen Carda
Dr. Miguel Armengot
Dr. Rafael Carmena
Dr. Francisco Sanz
Dr. Francisco Casas
Dr. Carolina Moreno
Dr. Pilar Codoñer-Franch
Dr. Silvia Castillo
Dr. Julio Cortijo
Ms. Sara Pastor
Dr. Joaquín Donat
Ms. Ana Reula
Dr. Ismael Ejarque
Ms. Silvia Vicente
Dr. Gemma Espí
Ms. Ana Isabel Ahullana
Dr. Rafael Fernández-Delgado
Ms. Mercedes Navarro
Dr. Esteban Morcillo
Dr. Federico Pallardó
Dr. Rafael Peris
Dr. Juan José Soler
Dr. María Torres
PRELIMINARY PROGRAMME
Day I: Wednesday, February 17th 2016
Time
08:00 –
09:00
09:00 –
09:15
09:15 –
10:00
Activity
Place
Speakers
Institution
School of
Medicine
(Hall)
Registration
Opening ceremony
Rare Respiratory Diseases
Aula Magna
Dr. Zurriaga;
Dr. Alfageme
Dr. Morcillo; Dr.
Pallardó; Dr.
Navarro.
Conselleria de Sanitat
Universitat de Valencia
Facultad de Medicina-UV
Aula Magna
Dr. Matthias
Griese
Childrens’ Hospital of the
Ludwig-MaximiliansUniversity (MunichGermany)
CYSTIC FIBROSIS
(Coordinator: Amparo Escribano MD PhD)
10:00 –
10:25
ROUND TABLE
Where are we from? Where are we going?
Moderator: Dra. Concha Prados. President of the Spanish Society of Cystic Fibrosis
Natural history of the disease:
Changes, achievements and milestones
Dr. Amparo
Hospital Clínico, Valencia
Aula Magna
in the last 70 years
Escribano
(Spain)
10:25 –
10:50
Current treatment of cystic fibrosis
Aula Magna
10:50 –
11:00
Discussion
Aula Magna
Dr. Esther
Quintana
Hospital Virgen del Rocío,
Sevilla (Spain)
Ms. Yasmina
Costa
President of the Valencian
Association of Cystic
Fibrosis
COFFEE BREAK
11:30 –
12:15
12:15 –
12:45
12:45 –
13:15
13:15 –
13:30
Vision of patients affected by cystic
fibrosis: The long road to Ithaca
Aula Magna
ROUND TABLE
The future is already here
Moderator: Dr. Amparo Solé. President of the Spanish Foundation of Cystic Fibrosis
CFTR Protein Repair Therapy in
Unidad FQ. Hospital Univ.
Cystic Fibrosis. The Spanish
Aula Magna
Dr. Carmen Luna
12 de Octubre. Madrid
experience with Ivacaftor (Kalydeco)
(Spain)
Current state of research in the
Dr. Pedro
Unidad FQ. Hospital
treatment of F508del mutation and
Aula Magna
Mondejar
Clínico Univ. Virgen de
other common mutations
Arreixaca. Murcia (Spain)
Discussion
Aula Magna
LUNCH
IDIOPATHIC PULMONARY FIBROSIS
(Coordinator: Estrella Fernández Fabrellas MD PhD)
15:30 –
16:00
16:00 –
16:30
16:30 –
17:00
Discovering the pathogenesis of IPF
Recent approaches in the diagnosis
of IPF
Prognostic factors for IPF
Aula
Magna
Aula
Magna
Aula
Magna
Dr. María Molina
Dr. Estrella Fernández
Dr. Elena Bollo
Hospital Universitari de
Bellvitge, Barcelona
(Spain)
Hospital General, Valencia
(Spain)
Complejo Hospitalario de
León (Spain)
COFFEE BREAK
17:30 –
18:00
What is going on in translational
research in FPI?
Aula
Magna
Dr. Serrano-Mollar
18:00 –
18:30
FPI in real life: clinical cases
Aula
Magna
Dr. José Antonio
Rodríguez Portal
Instituto de
Investigaciones
Biomédicas, Barcelona
(Spain)
Hospital Virgen del Rocío,
Sevilla (Spain)
Day II: Thursday, February 18th 2016
Time
Activity
Place
Speakers
Institution
ALPHA-1 ANTITRYPSIN DEFICIENCY (AATD)
(Coordinator: Francisco Dasí PhD)
10:00 –
10:30
10:30 –
11:00
11:00 –
11:30
The natural history of
AATD
AATD treatment and
management
Aula
Magna
Aula
Magna
Aula
Magna
12:00 –
12:30
12:30 –
13:00
13:00 –
14:00
Thinking of the
unknown
Translational
research in AATD
Clinical cases in
AATD
Aula
Magna
Aula
Magna
Aula
Magna
Diagnosis of AATD
Dr. Adolfo Baloira
Dr. Beatriz Martínez
Dr. Marc Miravitlles
Complexo Hospitalario Pontevedra
(Spain)
Intituto de Salud Carlos III, Madrid
(Spain)
Hospital Vall d’Hebrón, Barcelona
(Spain)
COFFEE BREAK
Dr. Ángeles Requena
Dr. Francisco Dasí
Dr. María Torres
and López-Campos
Hospital de Hellín, Albacete (Spain)
FIHCUV/IIS INCLIVA, Valencia
(Spain)
Complexo Hospitalario de Vigo y H.
U. Virgen del Rocio, Sevilla (Spain).
LUNCH
15:30 –
16:00
16:00 –
16:30
16:30 –
17:00
PRIMARY CILIARY DYSKINESIA (PCD)
(Coordinator: Miguel Armengot MD PhD)
Primary ciliary dyskinesia:
Aula
Historical development from its
Dr. Jane Lucas
Magna
discovery to the current concept
Primary ciliary dyskinesia:
Aula
Dr. Xavi Milara
Genetics and future prospects
Magna
Aula
Research in PCD
Dr. Jane Lucas
Magna
University of
Southampton (UK)
Hospital General,
Valencia
University of
Southampton (UK)
COFFEE BREAK
17:30 –
18:00
Clinical manifestations in adults
and children. Lung, sinus and ear
disease. Evolution and prognosis.
Aula
Magna
Dr. Antonio Moreno
18:00 –
18:30
Clinical cases in PCD
Aula
Magna
Dr. Miguel Armengot
18:30 –
19:00
It's time for patients
19:00
Closing ceremony
Mr. Tomás Castillo
Aula
Magna
Drs. Amparo Escribano;
Estrella Fernández;
Miguel Armengot;
Francisco Dasí
Hospital Vall
d’Hebrón (Spain)
Hospital General,
Valencia (Spain)
President of the
platform of patient’s
organizations
HCUV-Malvarrosa
Hospital General
INCLIVA (Spain)